{"id":394,"date":"2021-10-16T07:22:29","date_gmt":"2021-10-16T12:22:29","guid":{"rendered":"http:\/\/herpescureadvocacy.com\/?p=394"},"modified":"2026-04-24T19:57:58","modified_gmt":"2026-04-24T23:57:58","slug":"new-hsv-advocates-a-starters-guide-to-activism","status":"publish","type":"post","link":"https:\/\/herpescureadvocacy.com\/2021\/10\/16\/new-hsv-advocates-a-starters-guide-to-activism\/","title":{"rendered":"New HSV Advocates: A Starters Guide to Activism"},"content":{"rendered":"\n<figure class=\"wp-block-image alignwide size-large\"><img data-recalc-dims=\"1\" loading=\"lazy\" decoding=\"async\" width=\"750\" height=\"250\" data-attachment-id=\"7160\" data-permalink=\"https:\/\/herpescureadvocacy.com\/2021\/10\/16\/new-hsv-advocates-a-starters-guide-to-activism\/document%ef%bc%99\/\" data-orig-file=\"https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2021\/10\/Document%EF%BC%99.png?fit=1920%2C640&amp;ssl=1\" data-orig-size=\"1920,640\" data-comments-opened=\"0\" data-image-meta=\"{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}\" data-image-title=\"Document\uff19\" data-image-description=\"\" data-image-caption=\"\" data-large-file=\"https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2021\/10\/Document%EF%BC%99.png?fit=750%2C250&amp;ssl=1\" src=\"https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2021\/10\/Document%EF%BC%99.png?resize=750%2C250&#038;ssl=1\" alt=\"\" class=\"wp-image-7160\" srcset=\"https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2021\/10\/Document%EF%BC%99.png?resize=1024%2C341&amp;ssl=1 1024w, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2021\/10\/Document%EF%BC%99.png?resize=300%2C100&amp;ssl=1 300w, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2021\/10\/Document%EF%BC%99.png?resize=768%2C256&amp;ssl=1 768w, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2021\/10\/Document%EF%BC%99.png?resize=1536%2C512&amp;ssl=1 1536w, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2021\/10\/Document%EF%BC%99.png?resize=1200%2C400&amp;ssl=1 1200w, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2021\/10\/Document%EF%BC%99.png?resize=1568%2C523&amp;ssl=1 1568w, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2021\/10\/Document%EF%BC%99.png?w=1920&amp;ssl=1 1920w\" sizes=\"auto, (max-width: 750px) 100vw, 750px\" \/><\/figure>\n\n\n\n<h1 class=\"wp-block-heading\">Getting started with Herpes Advocacy<\/h1>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<h1 class=\"wp-block-heading\">Step 1: Get Informed<\/h1>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>GET INFORMED: <\/strong>Make sure you know the <a href=\"https:\/\/herpescureadvocacy.com\/herpes-simplex-virus-101-the-basics\/\">Herpes 101<\/a> facts so you can speak to them in your advocacy. Read the <a href=\"https:\/\/herpescureadvocacy.com\/blog\/\">latest news.<\/a> <\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Sign up for Herpes Cure Advocacy emails to receive the latest news on the clinical pipeline, advocacy alerts, and more.<\/p>\n\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link wp-element-button\" href=\"https:\/\/herpescureadvocacy.com\/#newsletter\">Newsletter Signup<\/a><\/div>\n\n\n<h1 class=\"wp-block-heading\">Step 2: Use Your Voice for Change<\/h1>\n\n\n\n<p class=\"wp-block-paragraph\"><em>Be aggressive, use real information, and be polite. Email, call, show up at meetings. Make noise early and often.  Emails work. Phone calls work. Don&#8217;t underestimate the power of an email or phone call. <\/em><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>JOIN THE GROWING VOICES ON SOCIAL MEDIA: <\/strong>Follow us on <a href=\"https:\/\/x.com\/HerpesAdvocate\">X(Twitter)<\/a>, <a href=\"https:\/\/www.instagram.com\/herpesadvocate\/?hl=en\">Instagram<\/a>, <a href=\"https:\/\/www.facebook.com\/profile.php?id=100087212780212\">Facebook<\/a>, <a href=\"https:\/\/bsky.app\/profile\/herpesadvocate.bsky.social\">BlueSky<\/a>, <a href=\"https:\/\/www.reddit.com\/r\/HerpesCureAdvocates\/\">Reddit<\/a>, <a href=\"https:\/\/www.linkedin.com\/company\/herpes-cure-advocacy\/\">LinkedIn<\/a>, and <a href=\"https:\/\/www.tiktok.com\/@herpes.advocate\">TikTok<\/a>! Help us spread the word!<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>DOWLOAD<\/strong> assets from our <a href=\"https:\/\/herpescureadvocacy.com\/herpes-advocate-social-media-toolkit\/\" data-type=\"page\" data-id=\"2539\">Social Media Toolkit<\/a>. <\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Learn how to <a href=\"https:\/\/herpescureadvocacy.com\/%f0%9f%93%a2-how-to-maximize-herpes-advocacy-on-x-formerly-twitter-leverage-ai-for-impact-%f0%9f%9a%80\/\" data-type=\"link\" data-id=\"https:\/\/herpescureadvocacy.com\/%f0%9f%93%a2-how-to-maximize-herpes-advocacy-on-x-formerly-twitter-leverage-ai-for-impact-%f0%9f%9a%80\/\">maximize your <strong>IMPACT<\/strong> here<\/a>. <\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>DOWNLOAD<\/strong> these <a href=\"https:\/\/herpescureadvocacy.com\/%f0%9f%93%a2-herpes-cure-advocacy-resources\/\">flyers and take action<\/a>! Bring them to meetings, share them with stakeholders, and distribute them at local health departments, doctors&#8217; offices, and in your community.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>TAKE ACTION:<\/strong> Email, call, show up to meetings. We encourage advocates to send emails, make phone calls, and meet with stakeholders independently and ask for change.  <\/p>\n\n\n\n<p class=\"wp-block-paragraph\">You can view and participate in HCA coordinated and time sensitive advocacy alerts by <a href=\"https:\/\/herpescureadvocacy.com\/#newsletter\">signing up for emails<\/a> and following us on all channels. <\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Participate archived advocacy alerts by clicking <a href=\"https:\/\/herpescureadvocacy.com\/advocacy-alerts\/\">here<\/a>. <\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<div class=\"wp-block-group\"><div class=\"wp-block-group__inner-container is-layout-constrained wp-block-group-is-layout-constrained\">\n<h1 class=\"wp-block-heading\">Step 3: Contact stakeholders <\/h1>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>CONTACT YOUR ELECTED REPRESENTATIVES:<\/strong>  There is nothing more important than asking the government for change. Call, send an email or meet with your elected representatives (specifically ask for their Health Policy staff) and ask them for change today.  Ask for a meeting!<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>CONTACT PUBLIC HEALTH LEADERS: <\/strong>Contact key stakeholders in public health to ask them to prioritize Herpes cure, treatment and prevention. Call. Email. Ask for a live meeting! <\/p>\n\n\n\n<p class=\"wp-block-paragraph\">A sample email is <a href=\"https:\/\/herpescureadvocacy.com\/wp-content\/uploads\/2023\/05\/Template_Advocacy_Lett.docx.pdf\">here<\/a>.  <\/p>\n\n\n\n<p class=\"wp-block-paragraph\">An updated list of stakeholders contact information is <a href=\"https:\/\/herpescureadvocacy.com\/2021\/12\/28\/key-stakeholders-for-herpes-patient-advocacy\/\" data-type=\"post\" data-id=\"1742\">here<\/a>.<\/p>\n<\/div><\/div>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h1 class=\"wp-block-heading\">Step 4: Get Involved with HCA!<\/h1>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>JOIN THE PATIENT ADVOCATE TASK FORCE: <\/strong>Advocates who have completed all tasks on New Advocates Starters Guide are welcome to apply for the Patient Advocate Task Force. <\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Monthly meeting attendance required.  Please be able to contribute 5+ hours a month to volunteer for the organization. The task force volunteers may help organize meetings, gather information, or more. <\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Click here to <a href=\"https:\/\/herpescureadvocacy.com\/patient-advocate-task-force-application\/\">apply <\/a>now.  <\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong><em>PLEASE NOTE ALL TASK FORCE applicants will be interviewed. <\/em><\/strong><\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h1 class=\"wp-block-heading\">Step 5: Donate to support advocacy for a cure today<\/h1>\n\n\n<div class=\"wp-block-button\"><a class=\"wp-block-button__link wp-element-button\" href=\"https:\/\/herpescureadvocacy.com\/donate\/\">Donate Today<\/a><\/div>\n<!-- \/wp:post-content -->","protected":false},"excerpt":{"rendered":"<p>Getting started with Herpes Advocacy Step 1: Get Informed GET INFORMED: Make sure you know the Herpes 101 facts so you can speak to them in your advocacy. Read the<a class=\"more-link\" href=\"https:\/\/herpescureadvocacy.com\/2021\/10\/16\/new-hsv-advocates-a-starters-guide-to-activism\/\">Continue reading <span class=\"screen-reader-text\">&#8220;New HSV Advocates: A Starters Guide to Activism&#8221;<\/span><\/a><\/p>\n","protected":false},"author":205069572,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_coblocks_attr":"Arial,Montserrat","_coblocks_dimensions":"","_coblocks_responsive_height":"","_coblocks_accordion_ie_support":"","_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"{title}\n\n{excerpt}\n\n{url}","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2},"_wpas_customize_per_network":false,"jetpack_post_was_ever_published":false},"categories":[5967],"tags":[719338643,608181,42501519,382374,2871574,5890256,5890257,5004,104828,103,88731,84527,719338644,52877],"class_list":["post-394","post","type-post","status-publish","format-standard","hentry","category-advocacy","tag-advocacy","tag-cognitive-decline","tag-crispr","tag-cure","tag-herpes-simplex-virus","tag-hsv-1","tag-hsv-2","tag-mental-health","tag-mrna","tag-news","tag-patients","tag-prevention","tag-treatment","tag-vaccine","entry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.9 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>New HSV Advocates: A Starters Guide to Activism - Herpes Cure Advocacy<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/herpescureadvocacy.com\/2021\/10\/16\/new-hsv-advocates-a-starters-guide-to-activism\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"New HSV Advocates: A Starters Guide to Activism - Herpes Cure Advocacy\" \/>\n<meta property=\"og:description\" content=\"Getting started with Herpes Advocacy Step 1: Get Informed GET INFORMED: Make sure you know the Herpes 101 facts so you can speak to them in your advocacy. 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David grew up in London, England, and attended Birmingham University for a BSc in microbiology, and Liverpool University\u2026","rel":"","context":"In &quot;Advocacy&quot;","block_context":{"text":"Advocacy","link":"https:\/\/herpescureadvocacy.com\/category\/advocacy\/"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2024\/08\/leib-web.jpg?fit=1024%2C1024&ssl=1&resize=350%2C200","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2024\/08\/leib-web.jpg?fit=1024%2C1024&ssl=1&resize=350%2C200 1x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2024\/08\/leib-web.jpg?fit=1024%2C1024&ssl=1&resize=525%2C300 1.5x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2024\/08\/leib-web.jpg?fit=1024%2C1024&ssl=1&resize=700%2C400 2x"},"classes":[]},{"id":6374,"url":"https:\/\/herpescureadvocacy.com\/2025\/09\/11\/herpes-cure-advocacy-makes-push-for-neonatal-herpes-as-reportable-condition\/","url_meta":{"origin":394,"position":5},"title":"\u00a0Herpes Cure Advocacy Makes Push for Neonatal Herpes as Reportable Condition","author":"Patient Advocate","date":"September 11, 2025","format":false,"excerpt":"Herpes Cure Advocacy is advocating to make the neonatal herpes infection reportable via a recommendation from the\u00a0Committee of State and Territorial Epidemiologists (CSTE). 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