{"id":4079,"date":"2024-07-15T16:59:19","date_gmt":"2024-07-15T20:59:19","guid":{"rendered":"https:\/\/herpescureadvocacy.com\/?p=4079"},"modified":"2024-07-15T22:32:27","modified_gmt":"2024-07-16T02:32:27","slug":"lillys-story-thriving-with-hsv","status":"publish","type":"post","link":"https:\/\/herpescureadvocacy.com\/2024\/07\/15\/lillys-story-thriving-with-hsv\/","title":{"rendered":"Lilly&#8217;s Story: Thriving with HSV"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\">&#8220;My experience with my herpes diagnosis has been incredibly eye opening and transformational. I was diagnosed with genital\u00a0herpes when I was 13 years\u00a0old. I experienced cold sores since I was a child but never had symptoms\u00a0genitally.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">When I was 13, I had my first genital outbreak without ever having been sexually active. I was extremely confused and so were my parents and doctor. The general consensus we&#8217;ve come to is that I contracted the virus during child birth&nbsp;from my mother &#8211; which is rare but still possible. I had no idea what to make of the diagnosis but I definitely jumped to the worst conclusions. &#8220;I&#8217;ll never have a partner&#8221; &#8220;I&#8217;ll never have a family&#8221; &#8220;I&#8217;ll never have a fulfilling sex life.&#8221; These kinds of thoughts took hold for a while, until I got older and decided that I don&#8217;t want to live by those beliefs. I decided to date, venture out, and explore my sexuality. I practiced disclosing to people and it went well! <\/p>\n\n\n\n<p class=\"wp-block-paragraph\">I realized through disclosing and talking about it more openly that it&#8217;s actually not as big of a deal as I thought it would be. If you are dealing with a new diagnosis or struggle with feelings of shame &#8211; please seek help and resources to assist you in working through them. You CAN get to the other side of it. You WILL get to the other side of it. This diagnosis does not at all have to define you or your sexuality &#8211; you get to decide who you want to be and how you want to feel about it.&#8221;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">To follow Lilly&#8217;s journey while living with HSV, check out her social media: <a href=\"https:\/\/www.instagram.com\/lillylillysmith\/\" data-type=\"link\" data-id=\"https:\/\/www.instagram.com\/lillylillysmith\/\">@lillylillysmith<\/a> and <a href=\"https:\/\/www.instagram.com\/lillysyoga\/?hl=en\" data-type=\"link\" data-id=\"https:\/\/www.instagram.com\/lillysyoga\/?hl=en\">@lillysyoga<\/a>. <\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/herpescureadvocacy.com\/life-with-herpes\/\" data-type=\"page\" data-id=\"3961\">Read other stories of people living with herpes here.<\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/herpescureadvocacy.com\/events\/category\/group-counseling\/\" data-type=\"tribe_events_cat\" data-id=\"719338664\">Join Herpes Cure Advocacy Monthly Counseling Session here.<\/a><\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Share your story.<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">Every person has a unique Herpes experience and it\u2019s important to highlight our real experiences living with this incurable infection. We are always looking for people to share their story living with HSV. If you\u2019re interested or want more info, please send us an <a href=\"mailto:info@herpescureadvocacy.com\" target=\"_blank\" rel=\"noreferrer noopener\">email<\/a>!<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<div class=\"wp-block-media-text is-stacked-on-mobile\" style=\"border-width:1px;grid-template-columns:42% auto\"><figure class=\"wp-block-media-text__media\"><img data-recalc-dims=\"1\" loading=\"lazy\" decoding=\"async\" width=\"750\" height=\"750\" data-attachment-id=\"7143\" data-permalink=\"https:\/\/herpescureadvocacy.com\/?attachment_id=7143\" data-orig-file=\"https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2023\/04\/Document2.png?fit=1080%2C1080&amp;ssl=1\" data-orig-size=\"1080,1080\" data-comments-opened=\"0\" data-image-meta=\"{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}\" data-image-title=\"Document2\" data-image-description=\"\" data-image-caption=\"\" data-large-file=\"https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2023\/04\/Document2.png?fit=750%2C750&amp;ssl=1\" src=\"https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2023\/04\/Document2.png?resize=750%2C750&#038;ssl=1\" alt=\"\" class=\"wp-image-7143 size-full\" srcset=\"https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2023\/04\/Document2.png?resize=1024%2C1024&amp;ssl=1 1024w, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2023\/04\/Document2.png?resize=300%2C300&amp;ssl=1 300w, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2023\/04\/Document2.png?resize=150%2C150&amp;ssl=1 150w, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2023\/04\/Document2.png?resize=768%2C768&amp;ssl=1 768w, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2023\/04\/Document2.png?resize=800%2C800&amp;ssl=1 800w, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2023\/04\/Document2.png?resize=600%2C600&amp;ssl=1 600w, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2023\/04\/Document2.png?resize=400%2C400&amp;ssl=1 400w, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2023\/04\/Document2.png?resize=200%2C200&amp;ssl=1 200w, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2023\/04\/Document2.png?w=1080&amp;ssl=1 1080w\" sizes=\"auto, (max-width: 750px) 100vw, 750px\" \/><\/figure><div class=\"wp-block-media-text__content\">\n<h6 class=\"wp-block-heading\"><strong><a href=\"https:\/\/herpescureadvocacy.com\/ways-to-give\/herpescureadvocacy.com\/donate\">Give Today and Join the Fight \u2192<\/a><\/strong><\/h6>\n\n\n\n<p class=\"wp-block-paragraph\"><em>Every donation \u2013 whether $10 or $10,000 \u2013 moves us closer to a world where herpes is effectively treated and free from stigma.<\/em><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Questions about giving?<\/strong>\u00a0Contact us at\u00a0<a href=\"mailto:info@herpescureadvocacy.com\">info@herpescureadvocacy.com<\/a>\u00a0or 302-307-3560.<\/p>\n<\/div><\/div>\n\n\n\n<p class=\"wp-block-paragraph\"><br><br><\/p>\n","protected":false},"excerpt":{"rendered":"<p>&#8220;My experience with my herpes diagnosis has been incredibly eye opening and transformational. I was diagnosed with genital\u00a0herpes when I was 13 years\u00a0old. I experienced cold sores since I was<a class=\"more-link\" href=\"https:\/\/herpescureadvocacy.com\/2024\/07\/15\/lillys-story-thriving-with-hsv\/\">Continue reading <span class=\"screen-reader-text\">&#8220;Lilly&#8217;s Story: Thriving with HSV&#8221;<\/span><\/a><\/p>\n","protected":false},"author":205069572,"featured_media":4100,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_coblocks_attr":"","_coblocks_dimensions":"","_coblocks_responsive_height":"","_coblocks_accordion_ie_support":"","_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"{title}\n\n{excerpt}\n\n{url}","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2},"_wpas_customize_per_network":false,"jetpack_post_was_ever_published":false},"categories":[1],"tags":[],"class_list":["post-4079","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized","entry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.9 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Lilly&#039;s Story: Thriving with HSV - Herpes Cure Advocacy<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/herpescureadvocacy.com\/2024\/07\/15\/lillys-story-thriving-with-hsv\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Lilly&#039;s Story: Thriving with HSV - Herpes Cure Advocacy\" \/>\n<meta property=\"og:description\" content=\"&#8220;My experience with my herpes diagnosis has been incredibly eye opening and transformational. 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Batteiger, MD, MS, Cornelis A. Rietmeijer, MD, PhD KEYWORDS Herpes simplex virus (HSV), HSV diagnosis, HSV treatment, HSV counseling KEY POINTS \u0015 \u00a0Genital herpes is a very common sexually transmitted infection caused by herpes simplex virus (HSV)-1 or HSV-2. \u0015 \u00a0Counseling is an important aspect of the management\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2024\/04\/Services_primary-care-jpeg.webp?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2024\/04\/Services_primary-care-jpeg.webp?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2024\/04\/Services_primary-care-jpeg.webp?resize=525%2C300&ssl=1 1.5x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2024\/04\/Services_primary-care-jpeg.webp?resize=700%2C400&ssl=1 2x"},"classes":[]},{"id":4396,"url":"https:\/\/herpescureadvocacy.com\/2024\/08\/18\/hsv-herpes-testing-diagnosis-treatment\/","url_meta":{"origin":4079,"position":1},"title":"Genital Herpes: Diagnosis, Testing, Treatment","author":"Patient Advocate","date":"August 18, 2024","format":false,"excerpt":"Johnston C, Wald A. Genital Herpes. JAMA. 2024;332(10):835\u2013836. doi:10.1001\/jama.2024.12743 Outstanding up-to-date summary of the genital herpes virus, symptoms, testing, and treatment by two of the world\u2019s leading herpes researchers and experts. Published in JAMA (Journal of the American Medical Association), among the most widely read medical journals, Dr. Christine Johnston\u2026","rel":"","context":"In &quot;Herpes Basics&quot;","block_context":{"text":"Herpes Basics","link":"https:\/\/herpescureadvocacy.com\/category\/article\/"},"img":{"alt_text":"","src":"","width":0,"height":0},"classes":[]},{"id":3769,"url":"https:\/\/herpescureadvocacy.com\/2024\/06\/15\/diagnosis-and-management-of-genital-herpes-in-the-primary-care-clinic\/","url_meta":{"origin":4079,"position":2},"title":"Diagnosis and Management of Genital Herpes in the Primary Care Clinic","author":"Patient Advocate","date":"June 15, 2024","format":false,"excerpt":"HCA is excited to announce that an informative webinar geared towards clinicians and healthcare providers has now been made available for your viewing! 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Participants included members of the herpes research community, industry representatives, public health advocates, government agency staff, scientists, patient advocates and individuals suffering\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2024\/05\/Untitled-design.png?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2024\/05\/Untitled-design.png?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2024\/05\/Untitled-design.png?resize=525%2C300&ssl=1 1.5x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2024\/05\/Untitled-design.png?resize=700%2C400&ssl=1 2x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2024\/05\/Untitled-design.png?resize=1050%2C600&ssl=1 3x"},"classes":[]},{"id":3428,"url":"https:\/\/herpescureadvocacy.com\/2024\/04\/01\/getting-a-better-grasp-on-genital-hsv-1\/","url_meta":{"origin":4079,"position":4},"title":"Getting a Better Grasp on Genital HSV-1","author":"Patient Advocate","date":"April 1, 2024","format":false,"excerpt":"One current challenge in the field of genital herpes is improving the diagnosis and management of patients with genital infections caused by herpes simplex type 1 (HSV-1). While HSV-1 and -2 are closely related, they differ in important ways. Perhaps most notably, up until now HSV-2 has overwhelmingly been the\u2026","rel":"","context":"With 1 comment","block_context":{"text":"With 1 comment","link":"https:\/\/herpescureadvocacy.com\/2024\/04\/01\/getting-a-better-grasp-on-genital-hsv-1\/#comments"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2024\/04\/Structure-of-Herpes-simplex-virus-1-HSV-1.webp?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2024\/04\/Structure-of-Herpes-simplex-virus-1-HSV-1.webp?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2024\/04\/Structure-of-Herpes-simplex-virus-1-HSV-1.webp?resize=525%2C300&ssl=1 1.5x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2024\/04\/Structure-of-Herpes-simplex-virus-1-HSV-1.webp?resize=700%2C400&ssl=1 2x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2024\/04\/Structure-of-Herpes-simplex-virus-1-HSV-1.webp?resize=1050%2C600&ssl=1 3x"},"classes":[]},{"id":7227,"url":"https:\/\/herpescureadvocacy.com\/2026\/05\/12\/publication-use-of-herpes-simplex-virus-type-1-and-type-2-antibody-tests-for-targeted-screening-for-genital-herpes\/","url_meta":{"origin":4079,"position":5},"title":"Publication: Use of Herpes Simplex Virus Type-1 and Type-2 Antibody Tests for Targeted Screening for Genital Herpes","author":"Patient Advocate","date":"May 12, 2026","format":false,"excerpt":"NEWS!\u00a0Members of the Herpes Cure Advocacy Board have recently published a new commentary in Sexually Transmitted Disease Journal on the Use of Herpes Simplex Virus Type-1 and Type-2 Antibody Tests for Targeted Screening for Genital Herpes. Read below: Use_of_herpes_simplex_virus_type_1_and_type_Sex Trans Dis May 2026Download Related Content","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"","width":0,"height":0},"classes":[]}],"_links":{"self":[{"href":"https:\/\/herpescureadvocacy.com\/wp-json\/wp\/v2\/posts\/4079","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/herpescureadvocacy.com\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/herpescureadvocacy.com\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/herpescureadvocacy.com\/wp-json\/wp\/v2\/users\/205069572"}],"replies":[{"embeddable":true,"href":"https:\/\/herpescureadvocacy.com\/wp-json\/wp\/v2\/comments?post=4079"}],"version-history":[{"count":11,"href":"https:\/\/herpescureadvocacy.com\/wp-json\/wp\/v2\/posts\/4079\/revisions"}],"predecessor-version":[{"id":4095,"href":"https:\/\/herpescureadvocacy.com\/wp-json\/wp\/v2\/posts\/4079\/revisions\/4095"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/herpescureadvocacy.com\/wp-json\/wp\/v2\/media\/4100"}],"wp:attachment":[{"href":"https:\/\/herpescureadvocacy.com\/wp-json\/wp\/v2\/media?parent=4079"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/herpescureadvocacy.com\/wp-json\/wp\/v2\/categories?post=4079"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/herpescureadvocacy.com\/wp-json\/wp\/v2\/tags?post=4079"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}