{"id":509,"date":"2021-11-27T16:23:10","date_gmt":"2021-11-27T20:23:10","guid":{"rendered":"https:\/\/herpescureadvocacy.com\/?page_id=509"},"modified":"2026-05-15T12:59:02","modified_gmt":"2026-05-15T16:59:02","slug":"advocacy-alerts","status":"publish","type":"page","link":"https:\/\/herpescureadvocacy.com\/advocacy-alerts\/","title":{"rendered":"Herpes Cure Advocacy: Action Alerts"},"content":{"rendered":"
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ADVOCACY ALERTS\ud83d\udea8\ud83d\udea8\ud83d\udea8<\/h1>\n\n\n\n

Use your voice. The movement for change starts with you. Don’t underestimate the power of an email or a phone call.<\/em><\/h6>\n\n\n\n
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August 9 Advocates Town Hall Meeting<\/h5>\n\n\n\n

Calling all advocates! Please register today for this town hall meeting with our advocate task force. Learn about our latest priorities and how you can help!<\/p>\n\n\n\n

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Register<\/a><\/div>\n<\/div>\n<\/div><\/div>\n\n\n\n
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August 5 Action Alert: Group Letter to President Biden<\/h5>\n\n\n\n

We wrote a group letter to President Biden asking for a federal task force to address the herpes epidemic. Click here to sign your name today!<\/p>\n\n\n\n

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Sign Group Letter<\/a><\/div>\n<\/div>\n<\/div><\/div>\n\n\n\n
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July 29 Action Alert: Press Outreach<\/h5>\n\n\n\n

Three important health writers to contact today to ask that they write about herpes. You can reach out through all available channels for maximum impact.<\/p>\n<\/div><\/div>\n\n\n\n

Ed Yong<\/strong>
Formerly The Atlantic
https:\/\/twitter.com\/edyong209<\/a><\/p>\n\n\n\n

Would advise writing to Ed on twitter asking for a story about herpes impact on brain health and potential association with Alzheimer\u2019s, neuro complications, etc.<\/p>\n\n\n\n

Ben Ryan<\/strong>
NYT, Wash Post, NBC
https:\/\/twitter.com\/benryanwriter<\/a>
benryan423@gmail.com
+1 (917) 697-5773<\/p>\n\n\n\n

Sample email to Ben: Hi Ben, I know you cover public health and sexual health issues. Why is genital herpes not being considered in HIV prevention efforts? 30% of new HIV cases are directly attributable to genital herpes – more than any STI. Herpes is not harmless and has potential for subclinical impacts that are not well known or understood. We need a syndemic approach to combat both epidemics.<\/p>\n\n\n\n

Are you aware there are nearly 50,000 cases of genital herpes a month in the US? Compared to less than 1,000 for mpox at its peak. And HSV is comparable if not more medically serious. Please consider a story.<\/p>\n\n\n\n

Fenit Nirappil<\/strong>
Washington Post
https:\/\/twitter.com\/FenitN<\/a>
fenit.nirappi@washpost.com
+1 (202) 618-2620<\/p>\n\n\n\n

Sample email to Fenit: Hi Fenit, I know you cover public health and sexual health issues. Why is genital herpes not being considered in HIV prevention efforts? 30% of new HIV cases are directly attributable to genital herpes – more than any STI. Herpes is not harmless and has potential for subclinical impacts that are not well known or understood. We need a syndemic approach to combat both epidemics.<\/p>\n\n\n\n

Are you aware there are nearly 50,000 cases of genital herpes a month in the US? Compared to less than 1,000 for mpox at its peak. And HSV is comparable if not more medically serious. Please consider a story.<\/p>\n\n\n\n

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May 29, 2023 NIAID Funding Request<\/span><\/h5>\n\n\n\n

The NIAID 2024 budget justification is here<\/a>. Action steps to take, please email NIAID Acting Director Dr. Hugh Auchincloss. Ask why Herpes Simplex isn’t more of a priority to NIAID leadership. Ask for herpes to be more of a priority in the 2025 Congress Budget Justification.<\/strong> <\/p>\n\n\n\n

Email template is here<\/a>.<\/strong><\/p>\n\n\n\n

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Dr. Hugh Auchincloss<\/p>\n\n\n\n

NIAID Acting Director <\/p>\n\n\n\n

hugh.auchincloss@nih.gov<\/p>\n\n\n\n

p: 301-761-7348<\/p>\n<\/div><\/div>\n\n\n\n

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May 15, 2023 Email HIV White House Program Director<\/span><\/h5>\n\n\n\n

Email the Director of the White House National HIV\/AIDS Policy, Harold Phillips. Learn More about Harold Phillips<\/a> and his role fight the HIV\/AIDS epidemic in the US. Ask Mr. Phillips if he is aware that 30% of new HIV cases are directly attributable to herpes – what is being doing to address genital herpes in America. <\/p>\n\n\n\n

Email template is here<\/a>.<\/strong><\/p>\n\n\n\n

Harold Phillips<\/p>\n\n\n\n

Director, White House National HIV\/AIDS Policy<\/p>\n\n\n\n

Harold.Phillips@hhs.gov<\/p>\n<\/div><\/div>\n\n\n\n

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Archived Advocacy Alerts<\/h6>\n\n\n\n

Advocacy at NIH: Multi-Council Working Group for HSV 4\/8<\/a><\/p>\n\n\n\n

NIMHD Advisory Council Meeting Feb 4<\/a><\/p>\n\n\n\n

Contact the HIV\/AIDS Department Head at CDC<\/a><\/p>\n\n\n\n

Contact Dr. Emily Erbelding, Chief of Microbiology and Infectious Disease at NIAID<\/a><\/p>\n\n\n\n

Contact Patient Affairs at the FDA<\/a><\/p>\n\n\n\n

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Give Today and Join the Fight \u2192<\/a><\/strong><\/h6>\n\n\n\n

Every donation \u2013 whether $10 or $10,000 \u2013 moves us closer to a world where herpes is effectively treated and free from stigma.<\/em><\/p>\n\n\n\n

Questions about giving?<\/strong>\u00a0Contact us at\u00a0info@herpescureadvocacy.com<\/a>\u00a0or 302-307-3560.<\/p>\n<\/div><\/div>\n","protected":false},"excerpt":{"rendered":"

ADVOCACY ALERTS\ud83d\udea8\ud83d\udea8\ud83d\udea8 Use your voice. The movement for change starts with you. Don’t underestimate the power of an email or a phone call. 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Here is today's advocacy alert. Hi Herpes advocates, we're happy you're here. Dear NIH Stakeholders, TARA.SCHWETZ@nih.gov,nina.schor@nih.gov,michael.lauer@nih.gov,alfred.johnson@nih.gov,robert.eisinger@nih.gov,DPCPSIdirectorsoffice@od.nih.gov,cyndi.burrus-shaw@nih.gov,walter.koroshetz@nih.gov,emily.erbelding@nih.gov,hodesr@31.nia.nih.gov,hugh.auchincloss@nih.gov,singleta@mail.nih.gov,Douglas.Sheeley@nih.gov,rachel.britt@nih.gov,yvonne.ferguson@nih.gov,brionna.hair@nih.gov,NIHME-CFSWorkingG@ninds.nih.gov I'm INSERT NAME HERE, I'm a patient advocate with Herpes Cure Advocacy. We are the only patient advocacy organization in the US advocating for Herpes cure, treatment\u00a0and prevention. Are you aware\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2023\/04\/Research.png?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2023\/04\/Research.png?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2023\/04\/Research.png?resize=525%2C300&ssl=1 1.5x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2023\/04\/Research.png?resize=700%2C400&ssl=1 2x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2023\/04\/Research.png?resize=1050%2C600&ssl=1 3x"},"classes":[]},{"id":2648,"url":"https:\/\/herpescureadvocacy.com\/clinical-trial-registry-for-herpes-simplex-virus-patients\/","url_meta":{"origin":509,"position":1},"title":"Patient Registry for Herpes Simplex Virus Patients","author":"Patient Advocate","date":"July 15, 2023","format":false,"excerpt":"Patients living with Herpes Simplex virus can join the Herpes Cure Advocacy patient registry to be alerted of clinical trials for which they may be eligible. If you have HSV and would want to be notified of clinical studies for new treatments please fill out this form. Patient information will\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2023\/07\/Screenshot-2023-07-15-103805.png?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2023\/07\/Screenshot-2023-07-15-103805.png?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2023\/07\/Screenshot-2023-07-15-103805.png?resize=525%2C300&ssl=1 1.5x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2023\/07\/Screenshot-2023-07-15-103805.png?resize=700%2C400&ssl=1 2x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2023\/07\/Screenshot-2023-07-15-103805.png?resize=1050%2C600&ssl=1 3x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2023\/07\/Screenshot-2023-07-15-103805.png?resize=1400%2C800&ssl=1 4x"},"classes":[]},{"id":6382,"url":"https:\/\/herpescureadvocacy.com\/get-involved\/","url_meta":{"origin":509,"position":2},"title":"Get Involved","author":"Patient Advocate","date":"September 11, 2025","format":false,"excerpt":"Ready to take a action? At Herpes Cure Advocacy, we believe that change happens when passionate people come together. Every voice, every action, every donation helps us move closer to a world with better treatments \u2014 and ultimately a cure. Whether you have one hour a month, a professional skill\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2024\/09\/thumbnail_IMG_1957-2.jpg?fit=640%2C481&ssl=1&resize=350%2C200","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2024\/09\/thumbnail_IMG_1957-2.jpg?fit=640%2C481&ssl=1&resize=350%2C200 1x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2024\/09\/thumbnail_IMG_1957-2.jpg?fit=640%2C481&ssl=1&resize=525%2C300 1.5x"},"classes":[]},{"id":6788,"url":"https:\/\/herpescureadvocacy.com\/2026-advocacy\/","url_meta":{"origin":509,"position":3},"title":"2026 Advocacy","author":"Patient Advocate","date":"February 12, 2026","format":false,"excerpt":"Herpes Cure Advocacy continues to maintain its priority of advocating for herpes to be a reportable disease, for including herpes in STI screening panels, and to financing research for vaccines and cures. Here you can find information on advocacy efforts where you can join in: HSV Screening Recommendation This white\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"","width":0,"height":0},"classes":[]},{"id":1037,"url":"https:\/\/herpescureadvocacy.com\/hca-advocacy-meetings\/","url_meta":{"origin":509,"position":4},"title":"HCA Advocacy Meetings","author":"Patient Advocate","date":"March 19, 2022","format":false,"excerpt":"Upcoming Meeting Dates Please join an upcoming Patient Advocate Board meeting to learn how you can help! March 30th 2022 6pm Register April 27 2022 6pm Register May 25th 2022 6pm Register June 29th 2022 6pm Register","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2022\/03\/bag-and-hands.jpg?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2022\/03\/bag-and-hands.jpg?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2022\/03\/bag-and-hands.jpg?resize=525%2C300&ssl=1 1.5x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2022\/03\/bag-and-hands.jpg?resize=700%2C400&ssl=1 2x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2022\/03\/bag-and-hands.jpg?resize=1050%2C600&ssl=1 3x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2022\/03\/bag-and-hands.jpg?resize=1400%2C800&ssl=1 4x"},"classes":[]},{"id":5600,"url":"https:\/\/herpescureadvocacy.com\/%f0%9f%93%a2-herpes-cure-advocacy-resources\/","url_meta":{"origin":509,"position":5},"title":"\ud83d\udce2 Herpes Cure Advocacy Resources","author":"Patient Advocate","date":"February 27, 2025","format":false,"excerpt":"Download our flyers and information packet to help spread awareness and push for a cure! These advocacy materials are designed to educate stakeholders, engage the public, and drive action toward better research and treatment options. Take them to meetings, share them with decision-makers, and distribute them at local health departments\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"","width":0,"height":0},"classes":[]}],"_links":{"self":[{"href":"https:\/\/herpescureadvocacy.com\/wp-json\/wp\/v2\/pages\/509","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/herpescureadvocacy.com\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/herpescureadvocacy.com\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/herpescureadvocacy.com\/wp-json\/wp\/v2\/users\/205069572"}],"replies":[{"embeddable":true,"href":"https:\/\/herpescureadvocacy.com\/wp-json\/wp\/v2\/comments?post=509"}],"version-history":[{"count":28,"href":"https:\/\/herpescureadvocacy.com\/wp-json\/wp\/v2\/pages\/509\/revisions"}],"predecessor-version":[{"id":7239,"href":"https:\/\/herpescureadvocacy.com\/wp-json\/wp\/v2\/pages\/509\/revisions\/7239"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/herpescureadvocacy.com\/wp-json\/wp\/v2\/media\/2483"}],"wp:attachment":[{"href":"https:\/\/herpescureadvocacy.com\/wp-json\/wp\/v2\/media?parent=509"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}