{"id":6,"date":"2021-04-18T17:28:21","date_gmt":"2021-04-18T17:28:21","guid":{"rendered":"https:\/\/herpescureadvocacy.com\/?p=6"},"modified":"2021-04-19T01:29:56","modified_gmt":"2021-04-19T01:29:56","slug":"herpes-stories-what-a-cure-means-to-me","status":"publish","type":"post","link":"https:\/\/herpescureadvocacy.com\/2021\/04\/18\/herpes-stories-what-a-cure-means-to-me\/","title":{"rendered":"Sharing our stories"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\"><strong>We asked our community two questions. How has HSV affected your life? And what would better treatment or a cure mean for you?<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>How has HSV affected your life?<\/strong><br \/>I was diagnosed with HSV-2 at 21. The doctor was very abrupt and offered no support, medically or emotionally. It was, quite literally, soul crushing. I&#8217;d been with my boyfriend 3 or 4 months at the time and made him get tested. Negative. Looking back, it&#8217;s clear that he is an asymptomatic carrier who got a false negative because he wasn&#8217;t actively shedding anymore when he was tested. In the years since I&#8217;ve also been exposed to HSV-1. As I&#8217;ve aged I&#8217;ve found my symptoms have worsened and I&#8217;ve been on antivirals to mediocre success for nearly a decade. <\/p>\n\n\n\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\"><p><strong>That&#8217;s what helps me hang on and gives me hope.<\/strong><\/p><\/blockquote>\n\n\n\n<p class=\"wp-block-paragraph\">I&#8217;ve had two kids during this time and motherhood increases the transmission anxiety to the point of obsessive behaviors and occasional suicidal thoughts. I am never not worried about my children. We discourage sharing drinks, food, utensils, and cups, we encourage thorough hand washing, and I never kiss them. I can&#8217;t kiss booboos like other moms. The skin on my hands is reptilian from my constant hand washing. The stigma around the virus means I have no one to talk to about it, save my partner. My physical symptoms are, luckily, more annoying than anything else, but the mental and emotional toll is excruciating. Having contracted it from someone who is asymptomatic, the fear that I&#8217;ll transmit it during asymptomatic shedding is constant. This is why I don&#8217;t ever kiss my children. If it weren&#8217;t for Herpes Cure Research group I&#8217;ve found and their proactive work towards awareness and supporting cure research I would be a hopeless, anxious mess. <\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>What would better treatment or a cure mean for you?<\/strong><br \/><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">If there was something that could stop the shedding and reduce or remove my chances of transmission it would be a life saver. My biggest fear is giving this to someone who might have more extreme physical symptoms than I do. If I have to deal with my own physical symptoms and risks forever, so be it, but knowing that I could no longer transmit anymore would mean I could kiss my kids. I would do anything for that, risk anything. The timeline for treatments is long and chances are that when\/if anything is available my kids will be teens or maybe even adults. I&#8217;m in my early 30s and my hope is for something that will let me kiss my grandkids. That&#8217;s what helps me hang on and gives me hope.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">E.R., New England, USA<\/p>\n","protected":false},"excerpt":{"rendered":"<p>We asked our community two questions. How has HSV affected your life? And what would better treatment or a cure mean for you?<\/p>\n","protected":false},"author":205069572,"featured_media":47,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_coblocks_attr":"","_coblocks_dimensions":"","_coblocks_responsive_height":"","_coblocks_accordion_ie_support":"","_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"{title}\n\n{excerpt}\n\n{url}","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2},"_wpas_customize_per_network":false,"jetpack_post_was_ever_published":false},"categories":[1],"tags":[],"class_list":["post-6","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized","entry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.9 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Sharing our stories - Herpes Cure Advocacy<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/herpescureadvocacy.com\/2021\/04\/18\/herpes-stories-what-a-cure-means-to-me\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Sharing our stories - Herpes Cure Advocacy\" \/>\n<meta property=\"og:description\" content=\"We asked our community two questions. 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Perhaps most notably, up until now HSV-2 has overwhelmingly been the\u2026","rel":"","context":"With 1 comment","block_context":{"text":"With 1 comment","link":"https:\/\/herpescureadvocacy.com\/2024\/04\/01\/getting-a-better-grasp-on-genital-hsv-1\/#comments"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2024\/04\/Structure-of-Herpes-simplex-virus-1-HSV-1.webp?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2024\/04\/Structure-of-Herpes-simplex-virus-1-HSV-1.webp?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2024\/04\/Structure-of-Herpes-simplex-virus-1-HSV-1.webp?resize=525%2C300&ssl=1 1.5x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2024\/04\/Structure-of-Herpes-simplex-virus-1-HSV-1.webp?resize=700%2C400&ssl=1 2x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2024\/04\/Structure-of-Herpes-simplex-virus-1-HSV-1.webp?resize=1050%2C600&ssl=1 3x"},"classes":[]},{"id":1080,"url":"https:\/\/herpescureadvocacy.com\/2022\/04\/05\/hsv-scientists-give-herpes-impacted-communities-a-voice\/","url_meta":{"origin":6,"position":1},"title":"Herpes Scientists Give Impacted Communities a Voice","author":"Patient Advocate","date":"April 5, 2022","format":false,"excerpt":"The University of Washington Virology Division and the Vaccine and Infectious Disease Division at Fred Hutch Cancer Center have announced a new initiative for members of the communities affected by herpes simplex virus infection to join a new Community Advisory Board that will potentially inform future scientific research and\/or clinical\u2026","rel":"","context":"With 1 comment","block_context":{"text":"With 1 comment","link":"https:\/\/herpescureadvocacy.com\/2022\/04\/05\/hsv-scientists-give-herpes-impacted-communities-a-voice\/#comments"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2022\/04\/pexels-photo-3719037.jpeg?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2022\/04\/pexels-photo-3719037.jpeg?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2022\/04\/pexels-photo-3719037.jpeg?resize=525%2C300&ssl=1 1.5x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2022\/04\/pexels-photo-3719037.jpeg?resize=700%2C400&ssl=1 2x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2022\/04\/pexels-photo-3719037.jpeg?resize=1050%2C600&ssl=1 3x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2022\/04\/pexels-photo-3719037.jpeg?resize=1400%2C800&ssl=1 4x"},"classes":[]},{"id":5408,"url":"https:\/\/herpescureadvocacy.com\/2025\/01\/19\/exploring-the-link-between-herpes-and-alzheimers-disease\/","url_meta":{"origin":6,"position":2},"title":"Exploring the Link Between Herpes and Alzheimer\u2019s Disease","author":"Patient Advocate","date":"January 19, 2025","format":false,"excerpt":"Recent research has uncovered a potential connection between the herpes simplex virus (HSV) and Alzheimer\u2019s disease, sparking interest and concern within the medical and scientific communities. Alzheimer\u2019s, a progressive neurological disorder, is the most common cause of dementia worldwide, while HSV is best known for causing cold sores and genital\u2026","rel":"","context":"In &quot;Herpes Basics&quot;","block_context":{"text":"Herpes Basics","link":"https:\/\/herpescureadvocacy.com\/category\/article\/"},"img":{"alt_text":"","src":"","width":0,"height":0},"classes":[]},{"id":1022,"url":"https:\/\/herpescureadvocacy.com\/2022\/03\/18\/igm-test-removal-at-quest-diagnostics-is-a-win-for-herpes\/","url_meta":{"origin":6,"position":3},"title":"IgM test removal at QUEST Diagnostics is a win for Herpes clinical care","author":"Patient Advocate","date":"March 18, 2022","format":false,"excerpt":"Herpes Cure Advocacy celebrates and thanks Quest Diagnostics for removing the HSV 1\/2 IgM test from their product offerings. Quest Diagnostic joins Mayo Clinic in the removal of this test from their product offerings. This is a win for herpes advocacy and a small step forward to better clinical care\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2022\/03\/pexels-photo-2280571.jpeg?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2022\/03\/pexels-photo-2280571.jpeg?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2022\/03\/pexels-photo-2280571.jpeg?resize=525%2C300&ssl=1 1.5x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2022\/03\/pexels-photo-2280571.jpeg?resize=700%2C400&ssl=1 2x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2022\/03\/pexels-photo-2280571.jpeg?resize=1050%2C600&ssl=1 3x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2022\/03\/pexels-photo-2280571.jpeg?resize=1400%2C800&ssl=1 4x"},"classes":[]},{"id":3436,"url":"https:\/\/herpescureadvocacy.com\/2024\/04\/01\/a-practical-guide-to-diagnosis-management-and-patient-counseling-for-the-primary-care-clinician\/","url_meta":{"origin":6,"position":4},"title":"A Practical Guide to Diagnosis, Management, and Patient Counseling for the Primary Care Clinician","author":"Patient Advocate","date":"April 1, 2024","format":false,"excerpt":"Teresa A. Batteiger, MD, MS, Cornelis A. Rietmeijer, MD, PhD KEYWORDS Herpes simplex virus (HSV), HSV diagnosis, HSV treatment, HSV counseling KEY POINTS \u0015 \u00a0Genital herpes is a very common sexually transmitted infection caused by herpes simplex virus (HSV)-1 or HSV-2. \u0015 \u00a0Counseling is an important aspect of the management\u2026","rel":"","context":"Similar post","block_context":{"text":"Similar post","link":""},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2024\/04\/Services_primary-care-jpeg.webp?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2024\/04\/Services_primary-care-jpeg.webp?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2024\/04\/Services_primary-care-jpeg.webp?resize=525%2C300&ssl=1 1.5x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2024\/04\/Services_primary-care-jpeg.webp?resize=700%2C400&ssl=1 2x"},"classes":[]},{"id":793,"url":"https:\/\/herpescureadvocacy.com\/2022\/02\/05\/harvey-friedman-provides-hope-for-hsv-at-univ-pennsylvania\/","url_meta":{"origin":6,"position":5},"title":"Harvey Friedman provides hope for an HSV Vaccine at the University of Pennsylvania","author":"Patient Advocate","date":"February 5, 2022","format":false,"excerpt":"Researchers, led by Dr. Harvey Friedman, from the Perelman School of Medicine at the University of Pennsylvania are close to clinical trials testing a vaccine protecting against genital herpes. Phase I trials for this HSV vaccine candidate, that will test prevention of genital herpes in humans, are expected to begin\u2026","rel":"","context":"With 1 comment","block_context":{"text":"With 1 comment","link":"https:\/\/herpescureadvocacy.com\/2022\/02\/05\/harvey-friedman-provides-hope-for-hsv-at-univ-pennsylvania\/#comments"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2022\/02\/screen-shot-2022-02-05-at-4.51.59-pm.png?resize=350%2C200&ssl=1","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2022\/02\/screen-shot-2022-02-05-at-4.51.59-pm.png?resize=350%2C200&ssl=1 1x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2022\/02\/screen-shot-2022-02-05-at-4.51.59-pm.png?resize=525%2C300&ssl=1 1.5x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2022\/02\/screen-shot-2022-02-05-at-4.51.59-pm.png?resize=700%2C400&ssl=1 2x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2022\/02\/screen-shot-2022-02-05-at-4.51.59-pm.png?resize=1050%2C600&ssl=1 3x, https:\/\/i0.wp.com\/herpescureadvocacy.com\/wp-content\/uploads\/2022\/02\/screen-shot-2022-02-05-at-4.51.59-pm.png?resize=1400%2C800&ssl=1 4x"},"classes":[]}],"_links":{"self":[{"href":"https:\/\/herpescureadvocacy.com\/wp-json\/wp\/v2\/posts\/6","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/herpescureadvocacy.com\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/herpescureadvocacy.com\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/herpescureadvocacy.com\/wp-json\/wp\/v2\/users\/205069572"}],"replies":[{"embeddable":true,"href":"https:\/\/herpescureadvocacy.com\/wp-json\/wp\/v2\/comments?post=6"}],"version-history":[{"count":8,"href":"https:\/\/herpescureadvocacy.com\/wp-json\/wp\/v2\/posts\/6\/revisions"}],"predecessor-version":[{"id":117,"href":"https:\/\/herpescureadvocacy.com\/wp-json\/wp\/v2\/posts\/6\/revisions\/117"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/herpescureadvocacy.com\/wp-json\/wp\/v2\/media\/47"}],"wp:attachment":[{"href":"https:\/\/herpescureadvocacy.com\/wp-json\/wp\/v2\/media?parent=6"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/herpescureadvocacy.com\/wp-json\/wp\/v2\/categories?post=6"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/herpescureadvocacy.com\/wp-json\/wp\/v2\/tags?post=6"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}